Down Syndrome 1979, Part 5 To Stay or to Go? That Is the Question
Summary: With the bris over, real life with Rafael begins. Tzipora continues to grapple with her conviction to live with – and understand – emunah and bitachon. A jarring incident at a secular support group helps her realize that she should not judge the way others process grief, just as she doesn’t want others to judge her. Financial matters also come to the fore. While Rafael receives free once-a-week physical therapy from Baltimore City, the family faces mounting co-pay bills for services covered by private insurance. Maryland state law did not yet recognize the needs of families with children with disabilities, and in the Jewish community, too, there was little acknowledgment of or help for disabilities. The Fragers consider moving away from Baltimore.
Life finally settled into some semblance of normalcy. My schedule, as well as that of my toddler daughter, now revolved around Rafael’s therapy sessions. I did not go back to college to finish the BA I was working on. (I had planned to become a high school history and English teacher.) I also stopped teaching limudei kodesh at Bais Yaakov and various Hebrew schools. Instead, I attended three 90-minute physical therapy sessions per week at Mt. Washington Pediatric Hospital. That was in addition to the hour of physical therapy he received from the City once a week in our home. Each physical therapist gave me homework to do with Rafael, in hopes that he would meet the first year’s physical milestones in a timely fashion.






